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About the Organization
The Trisomy 13 and 18 Collaborative, a fiscally sponsored project of New Venture Fund, is a national philanthropic initiative dedicated to improving clinical care, family support, research, and education for individuals and families impacted by Trisomy 13 and 18. Through strategic grantmaking, stakeholder convenings, and partnerships across healthcare, research, and advocacy communities, the Collaborative is working to improve how these conditions are understood, supported, and managed. To date, the organization has awarded approximately $1 million in grants, established a multidisciplinary Steering Committee, and built a growing national network of clinicians, researchers, and families. Backed by an initial $15 million philanthropic investment and strong long-term support for its mission, the Collaborative is well positioned to drive meaningful and lasting change across the field.
To learn about Trisomy Collaborative: https://trisomycollaborative.org/
To learn about NVF: https://newventurefund.org/
The Opportunity
The Trisomy 13 and 18 Collaborative is seeking its inaugural Executive Director to lead the organization through its next phase of growth and impact. This is a unique opportunity to help shape a national initiative focused on improving how care, support, and outcomes are delivered for individuals and families affected by Trisomy 13 and 18. Working closely with the Advisory Board, New Venture Fund, clinicians, researchers, families, and community partners, the Executive Director will guide strategy, oversee a team of consultants supporting the organization's core functions, and help ensure that research, grantmaking, and stakeholder engagement efforts translate into meaningful improvements in care. Current priorities include advancing coordinated care models, supporting the development of specialized care centers, strengthening family support systems, and building the infrastructure needed to drive long-term systems change across the field.
Location, Compensation and Benefits
The Executive Director may be based remotely within the United States, with periodic travel required for stakeholder meetings, conferences, Board engagement, and field convenings. The anticipated salary range for this position is $275,000 - $325,000, commensurate with experience and qualifications. As a fiscally sponsored project of New Venture Fund, the position is eligible for a comprehensive benefits package that includes medical, dental, vision, retirement, paid time off, and other employee benefits.